Welcome to My Story with Multiple Sclerosis

It's time. This year I am turning 40 and I realize that I have had Multiple Sclerosis for 20 years. Half of my life has been with this disease. The Lord has prompted me that it is time to share my story. My story will include the initial symptoms that I felt early in my twenties, the endless journey to the diagnosis and the exacerbations along the way. The best parts of my journey include the lessons I have learned from my loving husband and amazing children. The unbelievable support from my mother, no matter what. My friendships that went to a whole new level of depth, when they discovered I was dealing with a chronic disease. Finally, the purpose my Lord and Savior has shown me through my greatest challenges.

Wednesday, July 28, 2010

Who am I?

Who am I?

I was driving in the car and had my iPod playing. It was playing the Casting Crowns song, "Who Am I?" I have listened to this song many times, and have been humbled by the lyrics. But today, I listened and thought of it as my prayer to the Lord.
Who am I, that the Lord of all the earth
Would care to know my name
Would care to feel my hurt
Who am I, that the bright and Morning Star
Would choose to light the way
For my ever wandering heart.

The song goes on to remind me that this is all because of what the Lord has done and will do. This is all part of His plan. It is not by anything that I have done or who I am, but all Him.

When you look at me, you don't see MS. Multiple Sclerosis is the hidden disease. One of the most common statements from people is, "you don't look sick". The weird thing is that I have even gone to my neurologist's office and had the office staff say that I "looked" fine, simply because I had combed my hair and had make-up on. MS effects approximately 250,000 t0 350,000 people in the United States. It is hidden! I love the fact that at times I can hide my MS from other people. I want to be known for who I am, not by what I have. But there is definitely a downside to having a disease that people can't see. I think it makes it harder for people to really comprehend the chronic pain that I have gone through with this disease. Bless the hearts of those who have someone in their lives with MS.

Let me show you the face of MS. Multiple Sclerosis typically strikes twice as many females as males. The onset is usually in her early 20's. She struggles with fatigue. Oh, when I say fatigue... I mean almost completely debilitating exhaustion. Behind the fatigue is a quiet battle with depression. There is organic depression that comes from the disease, then there is the sadness from not being able to do the things that she wants to do. Or feeling depressed about having to cancel some plans, again. She feels depressed because the MS has changed how she sees herself, and how others see her. MS takes things about ourselves without ever asking.
She hurts. MS is full of symptoms like fatigue, memory loss or trouble thinking and articulating thoughts. But she hurts. She hurts a lot. Just to let you know, she feels bad to say that she hurts all the time. But she does hurt all the time. Sometimes the pain is more than she thinks she can bear. When an attack hits, she can't walk and it's humiliating.

Who am I? Yes, I am the face of MS, but I am so much more. I am the wife, that is so sorry that you have to share this burden with me. But I am also the wife that loves you with my entire heart and thanks you for your tenderness and compassion. I am the wife that is thankful for a husband that has adapted his dreams to include the MS, but to not be dominated by it. I am the mother, who is so thankful that I did not listen to the doctors advice to not have any more children. I would've missed so much! I am the mother that hopes that by seeing this disease, that you will have learned that we are human and that this body is temporary. I hope that I have shown you that when sin entered the world that disease came in. This is not how God intended us to be. I hope that you have seen that God has allowed the MS to be in our family to teach us to trust in Him. I am the daughter that has had to learn to still rely on my mother, no matter what my age. I have learned that we never outgrow needing mom! I am the friend, that is humbled by the loyal friendships. My friends, you have taught me that God's love and touch is here on earth through you.

Who am I? Thank you Lord for creating me. Thank you Lord for being everything to me. I am your child. I am your daughter. I will trust always in you. When you created me you knew the journey that my family, friends and I would journey with MS, and you have shown us that you are here. I am yours, and I am part of the plan. Thank you Lord.

3 comments:

  1. Beautiful Carrie. Absolutely beautiful.

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  2. Thank you Carrie for the beautiful portrait. It's everything I would like to say but haven't had the courage. God Bless you and I will think of you in our journey with MS.

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